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August 28.2025
3 Minutes Read

Addressing Inequities in Caregiver Support at U.S. Transplant Centers

Support services for family caregivers report promotion with a confident young woman.

Understanding Caregiver Inequities in U.S. Transplant Centers

The National Alliance for Caregiving (NAC) has unveiled substantial disparities in support services offered to family caregivers at U.S. transplant centers. Their brief, The Family Caregiver Gap: Disparities and Missed Opportunities in Support Services Across U.S. Transplant Centers, highlights how systemic inequities affect caregivers' preparedness and overall patient care.

Why Caregiver Support Is Vital for Transplant Success

Family caregivers are often essential for a transplant's success, yet many face unanticipated challenges. The brief's findings reveal that caregivers of diverse backgrounds, particularly those from marginalized communities, encounter significant barriers to accessing necessary support services. This can lead to inadequate preparation for caregivers, which directly affects patient outcomes.

The Unequal Landscape of Caregiver Support Services

The NAC survey demonstrated glaring inequities across transplant centers based on factors such as race, income, and age. Notably, facilities serving predominantly low-income or Black/African American communities tend to have fewer resources for caregiver support. Moreover, young caregivers, who play an increasingly important role, are often overlooked entirely. Only 18% of centers provide youth-specific programs, leaving this crucial demographic without proper guidance or resources.

Barriers Created by Outsourced Services

Many essential services, like financial counseling and medical education, are often outsourced. This practice creates delays and complicates caregivers' efforts to secure necessary assistance. Without onsite support, caregivers may be left feeling overwhelmed and unprepared, which can further compromise quality patient care.

Proactive Screening: A Missed Opportunity

Interestingly, only 3% of surveyed centers regularly assess caregiver needs. This lack of proactive screening results in a reactive support model where needs are addressed only after crises arise. Enhancing screening processes could dramatically improve caregiver preparedness and, ultimately, patient outcomes.

Barriers to Awareness: A Key Challenge

Close to 48% of transplant centers reported that limited awareness of caregiver support needs is a significant challenge. This suggests a crucial gap in understanding the critical role caregivers play in the transplant process. Greater awareness at institutional levels is essential in addressing these disparities.

Recommendations for Policy Change

The NAC brief outlines actionable recommendations that could transform how caregivers are supported. By developing standardized screening protocols and integrating support throughout the transplant process, institutions can better serve families in need. Addressing social determinants of health and creating incentives for caregiving support through policies could drastically improve the landscape for caregivers, particularly those from underserved populations.

Looking Ahead: A Call for Systemic Change

As our healthcare system undergoes transformation, there's a unique opportunity to address and rectify caregiver inequities. "The support family caregivers receive shouldn’t be a lottery based on race, income, or zip code,” asserts Jason Resendez, President & CEO of NAC. By prioritizing caregiver support, we can ensure better outcomes for both caregivers and patients.

Conclusion: The Importance of Family Caregivers

Family caregivers play an indispensable role in the success of transplant procedures. However, as highlighted by the NAC's findings, they often do so without adequate support, particularly if they belong to marginalized communities. Strengthening this support system is not just a necessity; it is a moral imperative.

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09.17.2025

63 Million Caregivers Are Struggling: Understanding Their Silent Burden

Update Unseen Struggles of 63 Million Family Caregivers While society celebrates milestones and accomplishments, a silent wave of caregiving is quietly shaping our communities. With approximately 63 million Americans stepping into the crucial role of family caregivers, their work often goes unrecognized. These individuals juggle full-time jobs while managing complex medical and emotional needs of their loved ones. Recent insights highlight the pressing need for support, as these caregivers face immense burdens with limited resources. This article delves into their daily challenges and explores innovative solutions aimed at uplifting their well-being. The Heavy Toll of Caregiving: Who Feels the Impact? Among the staggering statistics presented in the upcoming Caregiving in the US 2025 report from the National Alliance for Caregiving, we learn that nearly half of caregivers provide intense care with little assistance. These caregivers often execute complex tasks—like administering medications and managing chronic health issues—without formal training. The pressures mount for lower-income families disproportionately, as they struggle to balance caregiving demands with financial limitations, which exacerbates their stress. Moreover, gender disparities are evident; women overwhelmingly bear the brunt of this responsibility. Studies reveal that female caregivers usually spend more time on hands-on care and report higher levels of emotional and physical exhaustion than men. This scenario raises critical questions about equity, mental health, and the structured support needed to aid caregivers effectively. Innovation Meets Caregiving: Pioneering Resources for Support The National Alliance for Caregiving is not merely acknowledging the challenges faced by caregivers; they are mobilizing efforts to foster immediate solutions. As key partners in USAging’s Innovations in Family Caregiver Services and Supports Initiative, the NAC has launched vital resources designed to connect caregivers to comprehensive support networks. Among these significant initiatives is the Caregiver Services and Supports Innovations Hub, an online platform enabling the Aging Network to access and share effective caregiver support programs. This streamlined approach helps avoid duplication of efforts while providing caregivers with credible resources tailored to their unique needs. Additionally, the National Caregiver Champions Collaborative stands as a testament to community-building. This collaborative forum facilitates exchange of best practices among caregiving professionals, fostering networking opportunities while ensuring caregivers benefit from the latest developments and resources available. Looking Ahead: Opportunities for Lasting Change As we reflect on the future of caregiving and its place in American society, it becomes essential to understand how collective action can promote transformative change. By participating in discussions like the Innovations in Caregiver Services and Supports Virtual Summit, one can better comprehend the intricacies surrounding caregiver support networks and advocate for policies that prioritize their needs. Investing in caregiver support not only lifts individuals but strengthens the fabric of our society. Supporting caregivers is an essential step towards securing comprehensive care for every sector of our communities, which in turn cultivates healthier families and enriched societal structures. Call to Action: Join the Movement Representatives from all walks of life are encouraged to engage in this vital conversation. If you wish to be part of the solution, consider attending the Innovations in Caregiver Services and Supports Virtual Summit. By gaining insights into caregiver challenges and potential solutions, you can take part in shaping a future where caregivers are supported and, in turn, strengthen our societal fabric. Register today and be a catalyst for change!

09.16.2025

Strengthening Medicare Support for Family Caregivers: The Urgent Call for Action

Update The Impact of Family Caregivers on Healthcare SystemsFamily caregivers are often the unsung heroes of the healthcare system, providing vital support to millions of Americans. With an estimated 63 million family caregivers currently in the U.S., their contributions are undeniable. Yet, the acknowledgment of their work in policy frameworks like Medicare remains limited. The National Alliance for Caregiving (NAC), recognizing this gap, has urged the Centers for Medicare & Medicaid Services (CMS) to enhance its support for these caregivers in its upcoming CY2026 rule.Recognizing the Essential Role of CaregiversIn light of a growing population of family caregivers—now comprising a significant workforce in health care—the NAC's recommendations are timely and crucial. Jason Resendez, NAC’s President & CEO, emphasizes that while CMS is starting to recognize the role of caregivers, there is still a pressing need for accelerated support mechanisms. The call for changes in the payment policies reflects a broader understanding that the health outcomes of patients hinge significantly on the wellbeing of their caregivers.Key Recommendations for CMS ActionThe NAC proposes that CMS establish Caregiver Training Services (CTS) as a permanent telehealth benefit under Medicare. This change would not only make caregivers' access to necessary training more equitable but would also align their training with other therapeutic interventions, promoting a smoother integration into the healthcare framework. Furthermore, expanding opportunities for community-based organizations to offer and bill for these services would drive innovation and accessibility.Additional recommendations include incorporating evidence-based caregiver support interventions into Medicare codes and ensuring that technical assistance is available to providers implementing CTS. Critically, NAC warns against the proposed elimination of the Social Determinants of Health (SDOH) assessment as a billable service, stressing the need for careful evaluation to prevent detriment to beneficiaries and families.The Future of Caregiving in MedicareAs healthcare continues to evolve, the contributions of family caregivers must be recognized as integral to the health system. Future predictions indicate that as the population ages and chronic illnesses rise, the demands on family caregivers will increase exponentially. Therefore, addressing their support through innovative Medicare policies is not just beneficial; it is imperative for a sustainable healthcare future.Community Engagement MattersIn partnership with over 50 organizations, NAC's efforts underscore the importance of collective action to champion for caregivers. By mobilizing community efforts and advocating for policies that validate caregivers, NAC aims to create a healthcare environment where family caregivers are supported adequately, thus ensuring improved health outcomes for patients.Your Role in AdvocacyThe proposed changes in the Medicare system present an excellent opportunity for community members to engage in advocacy. Families can participate by voicing their experiences and supporting initiatives that aim to reinforce the caregiver's role. Whether you are a caregiver, know someone who is, or are engaged in health policy, your input can help shape meaningful reforms.As we move towards the CY2026 proposed rule, it is essential to keep the conversation alive about the value of family caregivers. Their roles are not merely supportive—they are foundational to a responsive healthcare system. The continued advocacy and action from organizations like NAC will ensure that caregivers receive the recognition and support they deserve, enabling a healthier future for all.

09.10.2025

Why the FY26 Funding Bill for Family Caregivers Needs Your Support Now

Update Understanding the FY26 Funding Bill for CaregiversThe recent release of the Fiscal Year 2026 Labor, Health and Human Services, Education and Related Agencies funding bill by the House Committee on Appropriations has sparked significant discussion among advocates for family caregivers. With an aging population in the United States, the need for robust support systems has never been more critical. The National Alliance for Caregiving (NAC) has expressed both appreciation and disappointment regarding the funding bill, highlighting the complexities of caregiving in today’s society.The Impact of Caregiving on Families and CommunitiesFamily caregivers are often unsung heroes, providing care to loved ones and significantly impacting the community and economy. With over 63 million Americans acting as caregivers, their contributions are estimated at around $600 billion annually. This care enables countless individuals to remain in their homes, fostering independence while saving government resources by reducing reliance on institutional care. As the NAC points out, the need for support has increased by nearly 50% since 2015. Such statistics underline the importance of advocating for funding that reflects this growing reality.The Discrepancy Between House and Senate ProposalsWhile the House funding bill takes steps to allocate funds toward programs aiding family caregivers, it disappointingly reflects a $10 million decrease in overall funding for the Administration for Community Living. In contrast, the Senate has proposed significantly higher funding levels — $209 million for the National Family Caregiver Support Program (NFCSP) and $11 million for Lifespan Respite Care. Jason Resendez, President and CEO of the NAC, urges policymakers to bridge this gap in the funding proposals as they move toward finalizing the appropriations bill.Future Predictions: The Need for Enhanced Caregiver SupportAs the population age continues to rise, we can anticipate a corresponding increase in the number of caregivers. Currently, 10,000 Americans turn 65 every day. If investment in caregiver support does not keep pace with these demographics, the burden on caregivers is likely to exacerbate, potentially affecting the health and economic security of households across the nation. Predictions indicate that without adequate support, caregivers may face greater physical and emotional strain, leading to a decline in their health and overall community well-being.Counterarguments and Diverse PerspectivesCritics of the current funding proposals argue that the government should explore alternative funding methods to assist caregivers, such as private-public partnerships or community-funded initiatives. Advocates for these perspectives believe that fostering innovation might yield new approaches to support family caregivers beyond traditional funding models. However, such actions might take time to implement, whereas immediate funding increases could have a direct and profound impact on those in need.Taking Action: Why Your Support MattersAs the national conversation about caregiving continues, it’s essential for citizens to engage with their local representatives regarding the importance of increasing support for family caregivers. Utilizing social media, attending town hall meetings, or writing letters to Congress are all vital steps in advocating for the necessary changes. By advocating for the proposed increases from the Senate funding bill, you contribute to ensuring that families do not navigate the caregiving journey alone.Conclusion: Navigating the Future of CaregivingThe discussions surrounding the FY26 funding bill highlight the critical intersection of policy, caregiving, and community support. The time is now for lawmakers to recognize the essential contributions of family caregivers and commit to robust funding that meets their needs. By fostering a supportive environment for these individuals, we invest not only in our families but in the overall health and stability of our nation.

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