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July 25.2025
3 Minutes Read

America's 63 Million Family Caregivers: A Growing Crisis Requires Urgent Action

Crisis for America’s Family Caregivers report with caregiver hugging elderly woman.

The Hidden Crisis: Understanding America's Family Caregivers

More than 63 million Americans, equivalent to nearly 1 in 4 adults, are facing a crisis point as they provide care for loved ones with complex medical needs. A new report from AARP and the National Alliance for Caregiving highlights this growing trend, revealing that the number of family caregivers has surged by an astonishing 20 million over the last decade. In this landscape, caregivers often bear the burden largely alone, demonstrating both resilience and sacrifice while navigating challenges that threaten their health and financial well-being.

The Demands of Caregiving: A Full-Time Commitment?

Caregiving has evolved into a full-time job for many, with nearly one in four caregivers reporting that they provide over 40 hours of care each week. This relentless devotion is particularly pronounced among the "Sandwich Generation." This cohort, often tasked with the dual responsibilities of raising children while caring for aging parents, embodies the pressures first-hand. Within this demographic, stats suggest that nearly a third are managing this balancing act, with heightened stress affecting demographics such as Latino and Black caregivers.

Financial Strain: The Price of Caregiving

The financial implications of caregiving are staggering. Reports indicate that about half of caregivers have experienced significant financial strain due to their responsibilities, with many taking on debt or sacrificing personal savings to cover the costs of care. Younger, lower-income, Black, Latino, and LGBTQ+ caregivers face greater challenges, with rural caregivers also struggling to access affordable support services. Such financial hardships not only threaten the stability of these caregivers but also raise concerns about their ability to continue providing necessary care.

Workplace Realities: The Need for Support

Workplace support for family caregivers is critical, with six in ten caregivers also employed. They often experience work disruptions due to caregiving demands, indicating an urgent need for policies and benefits that accommodate these realities. More employees are gaining access to family caregiving-related benefits, such as flexible schedules and caregiving assistance, although salaried staff report significantly better access compared to their counterparts in hourly positions. Addressing these issues is vital for reducing stress and improving caregiver well-being.

The Health of Caregivers: A Cause for Alarm

Unfortunately, the health of caregivers themselves is suffering. Alarmingly, one in five caregivers describe their health as fair or poor, with nearly a quarter indicating they struggle to maintain their own health due to caregiving responsibilities. This situation is compounded by rising reports of emotional stress since the COVID-19 pandemic, signaling an urgent need for support systems that not only acknowledge caregivers' roles but actively assist in preserving their well-being.

Why Training Matters: Bridging the Knowledge Gap

In a field where many caregivers are expected to perform medical tasks without formal training, the reality is striking: only 11% have received any medical training necessary for aiding daily living activities. This presents both a challenge and an opportunity for systems to step forward, investing in training programs to empower caregivers. By providing education and resources, we can better equip this essential workforce, enabling them to deliver necessary care while safeguarding their own health.

An Urgent Call to Action: Systemic Change Needed

Advocates like AARP's CEO Myechia Minter-Jordan stress that immediate action is required from Congress to better support caregivers through legislation, including a proposed federal tax credit to alleviate some financial burdens. This crisis is no longer on the horizon; it is a reality faced by millions every day. As a society, the question looms larger—how do we redefine our value of care? By bringing visibility to family caregiving and acknowledging the weight it carries, we can begin to reshape policies that reflect the essential contributions these caregivers make.

In sum, the situation of family caregivers in America is calling for national attention. If you or someone you know is part of this raging storm, consider advocating for local and national policies that uphold the value of caregiving. Whether it’s by supporting accessible training programs or demanding workplace flexibility, every voice counts in this pivotal moment.

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09.17.2025

63 Million Caregivers Are Struggling: Understanding Their Silent Burden

Update Unseen Struggles of 63 Million Family Caregivers While society celebrates milestones and accomplishments, a silent wave of caregiving is quietly shaping our communities. With approximately 63 million Americans stepping into the crucial role of family caregivers, their work often goes unrecognized. These individuals juggle full-time jobs while managing complex medical and emotional needs of their loved ones. Recent insights highlight the pressing need for support, as these caregivers face immense burdens with limited resources. This article delves into their daily challenges and explores innovative solutions aimed at uplifting their well-being. The Heavy Toll of Caregiving: Who Feels the Impact? Among the staggering statistics presented in the upcoming Caregiving in the US 2025 report from the National Alliance for Caregiving, we learn that nearly half of caregivers provide intense care with little assistance. These caregivers often execute complex tasks—like administering medications and managing chronic health issues—without formal training. The pressures mount for lower-income families disproportionately, as they struggle to balance caregiving demands with financial limitations, which exacerbates their stress. Moreover, gender disparities are evident; women overwhelmingly bear the brunt of this responsibility. Studies reveal that female caregivers usually spend more time on hands-on care and report higher levels of emotional and physical exhaustion than men. This scenario raises critical questions about equity, mental health, and the structured support needed to aid caregivers effectively. Innovation Meets Caregiving: Pioneering Resources for Support The National Alliance for Caregiving is not merely acknowledging the challenges faced by caregivers; they are mobilizing efforts to foster immediate solutions. As key partners in USAging’s Innovations in Family Caregiver Services and Supports Initiative, the NAC has launched vital resources designed to connect caregivers to comprehensive support networks. Among these significant initiatives is the Caregiver Services and Supports Innovations Hub, an online platform enabling the Aging Network to access and share effective caregiver support programs. This streamlined approach helps avoid duplication of efforts while providing caregivers with credible resources tailored to their unique needs. Additionally, the National Caregiver Champions Collaborative stands as a testament to community-building. This collaborative forum facilitates exchange of best practices among caregiving professionals, fostering networking opportunities while ensuring caregivers benefit from the latest developments and resources available. Looking Ahead: Opportunities for Lasting Change As we reflect on the future of caregiving and its place in American society, it becomes essential to understand how collective action can promote transformative change. By participating in discussions like the Innovations in Caregiver Services and Supports Virtual Summit, one can better comprehend the intricacies surrounding caregiver support networks and advocate for policies that prioritize their needs. Investing in caregiver support not only lifts individuals but strengthens the fabric of our society. Supporting caregivers is an essential step towards securing comprehensive care for every sector of our communities, which in turn cultivates healthier families and enriched societal structures. Call to Action: Join the Movement Representatives from all walks of life are encouraged to engage in this vital conversation. If you wish to be part of the solution, consider attending the Innovations in Caregiver Services and Supports Virtual Summit. By gaining insights into caregiver challenges and potential solutions, you can take part in shaping a future where caregivers are supported and, in turn, strengthen our societal fabric. Register today and be a catalyst for change!

09.16.2025

Strengthening Medicare Support for Family Caregivers: The Urgent Call for Action

Update The Impact of Family Caregivers on Healthcare SystemsFamily caregivers are often the unsung heroes of the healthcare system, providing vital support to millions of Americans. With an estimated 63 million family caregivers currently in the U.S., their contributions are undeniable. Yet, the acknowledgment of their work in policy frameworks like Medicare remains limited. The National Alliance for Caregiving (NAC), recognizing this gap, has urged the Centers for Medicare & Medicaid Services (CMS) to enhance its support for these caregivers in its upcoming CY2026 rule.Recognizing the Essential Role of CaregiversIn light of a growing population of family caregivers—now comprising a significant workforce in health care—the NAC's recommendations are timely and crucial. Jason Resendez, NAC’s President & CEO, emphasizes that while CMS is starting to recognize the role of caregivers, there is still a pressing need for accelerated support mechanisms. The call for changes in the payment policies reflects a broader understanding that the health outcomes of patients hinge significantly on the wellbeing of their caregivers.Key Recommendations for CMS ActionThe NAC proposes that CMS establish Caregiver Training Services (CTS) as a permanent telehealth benefit under Medicare. This change would not only make caregivers' access to necessary training more equitable but would also align their training with other therapeutic interventions, promoting a smoother integration into the healthcare framework. Furthermore, expanding opportunities for community-based organizations to offer and bill for these services would drive innovation and accessibility.Additional recommendations include incorporating evidence-based caregiver support interventions into Medicare codes and ensuring that technical assistance is available to providers implementing CTS. Critically, NAC warns against the proposed elimination of the Social Determinants of Health (SDOH) assessment as a billable service, stressing the need for careful evaluation to prevent detriment to beneficiaries and families.The Future of Caregiving in MedicareAs healthcare continues to evolve, the contributions of family caregivers must be recognized as integral to the health system. Future predictions indicate that as the population ages and chronic illnesses rise, the demands on family caregivers will increase exponentially. Therefore, addressing their support through innovative Medicare policies is not just beneficial; it is imperative for a sustainable healthcare future.Community Engagement MattersIn partnership with over 50 organizations, NAC's efforts underscore the importance of collective action to champion for caregivers. By mobilizing community efforts and advocating for policies that validate caregivers, NAC aims to create a healthcare environment where family caregivers are supported adequately, thus ensuring improved health outcomes for patients.Your Role in AdvocacyThe proposed changes in the Medicare system present an excellent opportunity for community members to engage in advocacy. Families can participate by voicing their experiences and supporting initiatives that aim to reinforce the caregiver's role. Whether you are a caregiver, know someone who is, or are engaged in health policy, your input can help shape meaningful reforms.As we move towards the CY2026 proposed rule, it is essential to keep the conversation alive about the value of family caregivers. Their roles are not merely supportive—they are foundational to a responsive healthcare system. The continued advocacy and action from organizations like NAC will ensure that caregivers receive the recognition and support they deserve, enabling a healthier future for all.

09.10.2025

Why the FY26 Funding Bill for Family Caregivers Needs Your Support Now

Update Understanding the FY26 Funding Bill for CaregiversThe recent release of the Fiscal Year 2026 Labor, Health and Human Services, Education and Related Agencies funding bill by the House Committee on Appropriations has sparked significant discussion among advocates for family caregivers. With an aging population in the United States, the need for robust support systems has never been more critical. The National Alliance for Caregiving (NAC) has expressed both appreciation and disappointment regarding the funding bill, highlighting the complexities of caregiving in today’s society.The Impact of Caregiving on Families and CommunitiesFamily caregivers are often unsung heroes, providing care to loved ones and significantly impacting the community and economy. With over 63 million Americans acting as caregivers, their contributions are estimated at around $600 billion annually. This care enables countless individuals to remain in their homes, fostering independence while saving government resources by reducing reliance on institutional care. As the NAC points out, the need for support has increased by nearly 50% since 2015. Such statistics underline the importance of advocating for funding that reflects this growing reality.The Discrepancy Between House and Senate ProposalsWhile the House funding bill takes steps to allocate funds toward programs aiding family caregivers, it disappointingly reflects a $10 million decrease in overall funding for the Administration for Community Living. In contrast, the Senate has proposed significantly higher funding levels — $209 million for the National Family Caregiver Support Program (NFCSP) and $11 million for Lifespan Respite Care. Jason Resendez, President and CEO of the NAC, urges policymakers to bridge this gap in the funding proposals as they move toward finalizing the appropriations bill.Future Predictions: The Need for Enhanced Caregiver SupportAs the population age continues to rise, we can anticipate a corresponding increase in the number of caregivers. Currently, 10,000 Americans turn 65 every day. If investment in caregiver support does not keep pace with these demographics, the burden on caregivers is likely to exacerbate, potentially affecting the health and economic security of households across the nation. Predictions indicate that without adequate support, caregivers may face greater physical and emotional strain, leading to a decline in their health and overall community well-being.Counterarguments and Diverse PerspectivesCritics of the current funding proposals argue that the government should explore alternative funding methods to assist caregivers, such as private-public partnerships or community-funded initiatives. Advocates for these perspectives believe that fostering innovation might yield new approaches to support family caregivers beyond traditional funding models. However, such actions might take time to implement, whereas immediate funding increases could have a direct and profound impact on those in need.Taking Action: Why Your Support MattersAs the national conversation about caregiving continues, it’s essential for citizens to engage with their local representatives regarding the importance of increasing support for family caregivers. Utilizing social media, attending town hall meetings, or writing letters to Congress are all vital steps in advocating for the necessary changes. By advocating for the proposed increases from the Senate funding bill, you contribute to ensuring that families do not navigate the caregiving journey alone.Conclusion: Navigating the Future of CaregivingThe discussions surrounding the FY26 funding bill highlight the critical intersection of policy, caregiving, and community support. The time is now for lawmakers to recognize the essential contributions of family caregivers and commit to robust funding that meets their needs. By fostering a supportive environment for these individuals, we invest not only in our families but in the overall health and stability of our nation.

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