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February 05.2026
3 Minutes Read

The Consolidated Appropriations Act of 2026: A Game-Changer for Family Caregivers

NAC statement on family caregiver programs in federal budget.

A Milestone for Family Caregivers

The recent passage of the Consolidated Appropriations Act of 2026 marks a significant victory for family caregivers across America. In a time when many essential social services are facing cuts, Congress has chosen to prioritize support for the more than 63 million family caregivers in the country. These dedicated individuals contribute over $600 billion in unpaid labor, providing care for loved ones with chronic health issues and disabilities. The Act includes modest but vital funding increases for federal caregiver programs, reflecting a growing recognition of their essential role in maintaining family health and stability.

Understanding the Value of Family Caregivers

Family caregivers are often the unsung heroes of our healthcare system. They provide personal, emotional, and physical care to family members, enabling them to remain in their homes and communities. This not only helps families maintain their quality of life but also significantly reduces reliance on expensive institutional care. By supporting these caregivers, the government acknowledges their contributions and the economic logic behind investing in family care.

The Financial Implications of Caregiving

Caregiving is not just a labor of love; it's also a financial commitment. Caregivers often incur out-of-pocket expenses that can strain their financial resources. Acknowledging these challenges, the Consolidated Appropriations Act includes increases for various caregiver support programs like the National Family Caregiver Support Program and the Lifespan Respite Care Program. Addressing the financial burdens faced by caregivers will not only help these families but also assist in alleviating the pressures on the broader healthcare system.

Bipartisan Support for Caregiver Initiatives

The passage of this Act underscores bipartisan recognition of the critical role that family caregivers play. Congressional champions like House Appropriations Chair Tom Cole and Senate Appropriations Chair Susan Collins have worked tirelessly to ensure that caregiver needs are placed on the legislative agenda. Their efforts demonstrate that care for family caregivers transcends political boundaries, making it a shared priority that resonates across the aisle.

The Road Ahead: Building on Recent Gains

With the passage of the Consolidated Appropriations Act, the National Alliance for Caregiving is excited to explore the future possibilities for strengthening caregiver support in the coming years. While the funding increases are a positive step, ongoing advocacy will be essential to ensure that these programs grow in scope and support. Given the rapid increase in the aging population and the corresponding rise in caregiving responsibilities, it is crucial to sustain this momentum.

Empowering Caregivers Through Strategic Investments

Investing in caregiver support not only aids families but also benefits society at large. The more we can support caregivers, the fewer individuals will need costly institutional care. This approach not only sustains family units but effectively reduces long-term costs to public health systems.

As we celebrate this legislative achievement, it is vital for caregivers and advocates to remain engaged and informed. Carefully tracking the impact of new funding on local caregiving initiatives will help illuminate successes and areas needing further attention. Ultimately, empowering our nation's caregivers is an investment in the well-being of families across the country.

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02.11.2026

Exploring the IOTA Model: Enhancements That Improve Kidney Transplant Access

Update Understanding Recent Updates to the IOTA Model for Kidney TransplantsThe proposed updates to the Increasing Organ Transplant Access (IOTA) Model by the Centers for Medicare & Medicaid Services (CMS) are crucial in enhancing the kidney transplant system. The National Alliance for Caregiving (NAC) emphasizes the essential role of family caregivers in ensuring successful transplant outcomes. As we delve into the implications of these updates, it’s vital to recognize the intricate dynamics that shape transplant access and quality care.Historical Background of the IOTA ModelThe IOTA Model, which launched on July 1, 2025, is a mandatory program aimed at improving kidney transplant access for patients with end-stage renal disease (ESRD). The model seeks to address the significant disparities in kidney transplants, where the demand vastly outstrips the available organs. As per the model, kidney transplant hospitals that meet specific performance criteria can participate and be reimbursed for services provided to Medicare beneficiaries.The Importance of Family Caregivers in the Transplant ProcessCaregiving is a critical, yet often overlooked aspect of the transplant journey. Studies have shown that involving family caregivers in healthcare discussions significantly impacts patient outcomes, especially in the context of organ transplants. The NAC's comments suggest that integrating caregivers into organ acceptance conversations can lead to better-informed decisions and improved efficiency in the transplant process.Key Recommendations for Enhancing the IOTA ModelNAC put forth several recommendations for CMS to enhance the IOTA Model, including:Leveraging existing Medicare Caregiver Training Services to improve waitlist education.Including family caregivers in transplant conversations to better prepare them for the patient’s process.Advancing standardized caregiver assessments during the waitlist period to streamline care coordination.Providing onsite caregiver support services to ensure that families receive the needed resources and counseling without delays.The Role of Health Equity in the IOTA ModelThe issue of health equity remains a significant concern within the IOTA Model. CMS plans to maintain voluntary health equity plan submissions that will facilitate economic and outcomes analysis. Collecting health equity-related data is vital for understanding disparities in transplant access, particularly among underrepresented populations. Statistically, there are inequities based on race, socioeconomic status, and educational background that hinder access to essential organ transplantation services.Future Trends and Predictions for Kidney Transplant AccessLooking ahead, the IOTA Model represents a forward-thinking approach to increasing kidney transplant access while preserving patient care quality. As CMS evaluates the program’s impacts, future changes could involve expanding the definition of qualified participants to include more diverse hospital systems or implementing additional metrics for measuring patient success and system efficiency.The Need for Transparent Communication in Transplant ProcessesTransparency is critical in demystifying the organ transplant process. The IOTA Model proposes to notify waitlisted patients of their status changes, including when they are moved to inactive status. This communication is essential to maintain trust between patients and healthcare providers and to ensure patients understand their eligibility for organ offers. By fostering open lines of communication, the transplant process can become more patient-centered, ultimately leading to enhanced outcomes.Final Thoughts: Navigating the IOTA Model's ChangesWith rigorous data collection, ongoing caregiver support integration, and a push for health equity, the IOTA Model aims to reshape the landscape of kidney transplants fundamentally. As stakeholders engage in this transformative process, the focus must remain on improving patient experiences while balancing care quality and system efficiency. Advocates, healthcare providers, and policymakers must work collaboratively to ensure effective implementation, paving the way for a more equitable future in organ transplantation.

01.24.2026

Why Increased Funding for Family Caregiver Programs is Crucial Now

Update The Growing Demand for Family Caregiving Support In the United States, over 63 million family caregivers provide essential services to older adults and individuals with disabilities. Their contributions are often invisible and underappreciated, yet they form the backbone of the nation's long-term care and healthcare systems. As the population ages, the demand for caregiving support has surged, with estimates suggesting nearly a 50% growth in the caregiver population since 2015, particularly as 10,000 Americans turn 65 every day. However, recent modest increases in federal funding for family caregiver programs fall drastically short of addressing this overwhelming demand. Federal Funding: A Step Forward, But Insufficient The recent passage of the Consolidated Appropriations Act of 2026, which includes increases for the National Family Caregiver Support Program and other essential initiatives, marks a significant, if limited, victory for advocates. Jason Resendez, President and CEO of the National Alliance for Caregiving, expressed cautious optimism: "Recognition must be matched with resources. Without increased federal investment in caregiver supports, our families, communities, and economy will pay the price." Many lawmakers, including Senator Andy Kim, have vocalized the frustrations of caregivers navigating a complicated system fraught with bureaucracy and insufficient funding. State-Level Innovations in Caregiver Support While federal support remains insufficient, several states are taking the initiative to address the caregiver crisis. Policies such as tax breaks for family caregivers have been recently implemented in states like Oklahoma and South Carolina, offering some financial relief. These programs can reimburse caregivers for out-of-pocket expenses related to modifications in their homes or hiring help, helping them manage their responsibilities more sustainably. Innovations at the state level not only highlight the growing recognition of caregiver issues but may also serve as a blueprint for potential national reforms. Financial Burden Faced by Family Caregivers The financial realities of caregiving can be daunting. Many family caregivers face out-of-pocket expenses averaging $7,242 annually. Without adequate federal assistance, caregivers are often forced to dip into their savings or accumulate debt, compounding their stress. Subsidies and respite services provided by programs like the National Family Caregiver Support Program aim to alleviate these burdens but are currently limited in scope. As noted in a report from the AARP, nearly 74% of caregivers believe that available services have enabled them to care for their loved ones longer than would be possible without help. The Future of Caregiving Supports: A Call for Change Policy advocates are hopeful that the awareness raised during the COVID-19 pandemic will continue to influence legislative agendas. The Care Can't Wait coalition aims to elevate family caregiving to a national priority, as the current caregiving system fails to meet the growing needs. Future policy changes could include creating comprehensive paid family leave that benefits all working caregivers, an idea gaining traction across various advocacy groups. Addressing Misconceptions and Myths Despite increased visibility, several myths about caregiving persist. One common misconception is that caregiving does not impact individuals and families significantly unless they experience it firsthand. As discussions around the urgent need for caregiver support gain traction, more people are sharing their stories, creating a broader societal understanding of the complexities caregivers face. Concluding Thoughts on Family Caregiving As the landscape of caregiving continues to evolve, it is clear that significant steps must be taken to address the growing demands on family caregivers. With federal funding lagging behind the need, advocacy must persist both at the national and local levels. This issue is not merely a personal struggle; it reflects a broader societal concern that affects all of us. By understanding the value of family caregivers and supporting them adequately, we can foster stronger community ties and more resilient families. Together, let's push for change that uplifts and empowers those who tirelessly support our most vulnerable populations.

12.20.2025

Understanding the 2025 Transformation in Family Caregiving: Progress and Challenges

Update 2025: A Year of Transformation for Family Caregivers As we reflect on 2025, it is clear that the landscape for family caregivers has undergone significant change and development. Jason Resendez's recent insights highlight the challenges faced, particularly in a policy environment hostile to family caregivers. Despite these hurdles, we witnessed transformative advancements, illustrating resilience and determination in advocating for family caregivers across the nation. Key Achievements for Caregivers in 2025 One of the most notable achievements was the successful push against substantial Medicaid cuts, ensuring protections for family caregivers remained intact. This was no small feat in the current landscape, and it reflects a growing recognition of the invaluable role caregivers play in the healthcare system. Equally important was the advancement of Medicare’s acknowledgment of caregivers as essential partners in care—a pivotal shift that underscores caregivers' critical role in the continuum of care. In another milestone, Resendez reported the release of comprehensive caregiver data revealing nearly 63 million Americans providing family care—an increase of almost 50% since 2015. This statistic is more than just a number; it's a powerful narrative of transformation that is beginning to reshape national discussions on caregiving, moving it from the margins to a central focus in policy conversations. Senate Testimony and Growing Visibility This year also saw Resendez testify before the Senate Aging Committee, emphasizing the need for increased investment in family caregivers. His insights resonate with a broader trend where caregivers are finally being acknowledged in critical arenas, marking a new era of advocacy for this often-overlooked segment of the American public. This change brings hope, as Senators like Andy Kim raise their voices in solidarity, sharing personal stories that highlight the weight and exhaustion felt by those in the “sandwich generation,” where individuals balance the demands of both their careers and caregiving responsibilities. Understanding the Impact of Caregiving The recently released AARP-National Alliance for Caregiving report indicates profound ramifications stemming from caregiving roles. Over 40% of caregivers now provide high-intensity care, often undertaking complex medical tasks without adequate support or training. Financial burdens are also significant, with one in five caregivers facing negative impacts on their health and wealth due to their caregiving responsibilities. The report shows that many caregivers are employed yet struggle to balance their work with caregiving duties, often lacking necessary workplace protections. Future Predictions: Where We Go from Here What does the future hold for family caregivers? As we move into 2026, the prospects look promising. There’s a growing movement to implement a National Strategy to Support Family Caregivers, which encompasses comprehensive measures for financial support, workplace protections, and access to essential services. This strategy, developed from extensive public input, aims to provide a robust framework for supporting caregivers across various demographics and needs. Creating a Culture of Care The shift in attitudes toward caregiving also points to the necessity of fostering a culture that values and supports care. As Resendez and others have championed, recognizing caregivers' contributions is essential in shaping a more compassionate society. The testimonials and commitments shared during pivotal events like the Caregiver Nation Summit exemplify the collective will to create systemic changes that prioritize caregivers. Conclusion: Celebrating the Resilience of Caregivers In summary, while 2025 presented its challenges, it also illuminated the remarkable efforts and successes achieved by family caregivers. Together, we are part of a movement that seeks not just recognition but systemic support for those providing care. As we look forward to 2026 and beyond, the call to action remains: ensure that caregiving is valued, supported, and integrated into our national health conversation. Every family caregiver deserves this commitment from society. Join us in advocating for change, making space for care, and building a future where family caregivers are recognized as the heart of the movement.

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