Unpacking the 2023 990 Public Disclosure: Insights for Caregivers and Donors

Why Family Caregivers Must Be Protected in Medicaid Policy Changes

Update Understanding the Role of Family Caregivers in Medicaid Policy The Caregiver Nation Coalition (CNC), supported by the National Alliance for Caregiving (NAC), has recently taken a significant stand to protect family caregivers amidst impending changes to Medicaid policy. With millions of family caregivers playing a crucial role in healthcare, their well-being must be prioritized as states navigate new work requirements mandated by the recent Fiscal Year 2025 budget reconciliation law. A Call for Protection In a letter sent to the Centers for Medicare & Medicaid Services (CMS), 67 national organizations urged regulators to safeguard family caregivers from punitive measures tied to the new work requirements. According to the coalition, approximately 8 million family caregivers rely on Medicaid for their healthcare coverage. Jason Resendez, President and CEO of the NAC, emphasized that "Caregiving isn’t just work—it’s the work that holds our entire healthcare system together." The coalition’s calls for systemic changes include leveraging existing statutes to exempt eligible caregivers and simplifying verification processes through self-attestation. This represents a pivotal moment in recognizing caregivers not merely as supplementary but rather as foundational to the healthcare system. The Economic Implications of Caregiving Family caregivers are responsible for providing an estimated $600 billion in unpaid care annually, a staggering contribution that highlights the importance of their role in America's healthcare framework. With more than 63 million caregivers assisting individuals with medical needs, safeguarding their access to Medicaid is crucial—not just for their health, but due to the essential services they provide. Research indicates that by enabling family members to care for their loved ones at home, Medicaid significantly reduces overall healthcare costs and prevents unnecessary institutionalization. Innovative Approaches from States The report highlights various initiatives states have already implemented to support family caregivers. Notably, states like Colorado and Tennessee are paving the way for innovative strategies. For instance, Colorado has started waiving certain scope-of-practice laws to allow family caregivers to be compensated for skilled health-related tasks. Similarly, Tennessee mandates that Managed Care Organizations (MCOs) conduct formal caregiver assessments as part of their care planning process. These state-level strategies highlight a growing recognition of the critical role of family caregivers. According to the Kaiser Family Foundation, 4.5 million people utilize Medicaid home care services. This provides a perfect opportunity for states to further strengthen support systems aimed at family caregivers, which could effectively enhance care quality and decrease the burden on formal healthcare services. The Future of Family Caregiver Support In response to the new requirements in Medicaid policy, there is an urgent need for federal and state governments to collaborate on systematic strategies that support family caregivers. A multi-faceted approach includes not only legislative advocacy but also fostering public awareness about the significance of their contributions. Effective support strategies—ranging from training to respite care—should be widely disseminated across states to ensure caregivers receive adequate support for their critical role. Conclusion: Enabling the Backbone of Care The call to action by the Caregiver Nation Coalition symbolizes a collective acknowledgment of family caregivers' invaluable contributions. As policymakers continue to navigate the complexities of Medicaid implementation, it's imperative that they recognize and adapt to the needs of these caregivers. Failure to do so could lead to broader systemic issues within healthcare delivery, ultimately affecting the millions of individuals who rely on their support. Legislative champions must continue to advocate for safeguards that will protect and empower family caregivers as we move forward. As the situation unfolds, remaining informed and engaged is vital for the health and future of family caregiving. Take action by learning more about how you can advocate for family caregivers in your community and support policies that recognize their invaluable contributions.